PatientView to PKB
A new digital record to manage kidney care
A guide to switching from PatientView to Patients Know Best
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Switching from Patient View to Patients Know Best
The UK Kidney Association (formerly known as The Renal Association) has signed an important deal with Patients Know Best to re-platform their national patient-facing system PatientView to the PKB personal health records platform. The agreement will improve the existing security and functionality of the current PatientView system, which was one of the first patient portals in the UK.
PKB is a social enterprise founded for patients. It is also the largest provider of digital personal health records to the NHS.
This new system offers patients and their professional teams, advanced features and functionality including increased security, care planning, team-based messaging and an ecosystem of integrated wearable and monitoring devices to support clinical transformation.
To support you through the transition of moving from PatientView to PKB, this guide provides an overview of where you can continue to find the information you need.
Homepage
Using Patients Know Best
Home
From your homepage you can navigate to other sections of the record and perform some common actions like send messages, view recent notifications, or access the main tiles that take you to the relevant part of the record.
Letters & messages
Using Patients Know Best
Home > Events & messages
All messages between you and your professionals are displayed here. This includes any documents that have been sent by clinical teams e.g. appointment letters, clinic letters, referrals and discharge summaries.
Send a message
Using Patients Know Best
Home > Events & messages > Send a message
To start sending messages, click on the top right hand corner of the previous Events & Messages page and click ‘Send message’, then complete the form. This button is also available from the homepage.
Diagnosis
Using Patients Know Best
Home > Health > Diagnosis
All diagnoses added to the record can be found here. Current diagnoses are displayed first, then past diagnoses, if recorded. Click on a diagnosis to show who entered the information and when. We will also show coding information where available.
Test results
Using Patients Know Best
Home > Health > Tests
All test results that have either been manually entered or automatically sent from other systems used by the hospital, can be found here. To see details of a test, click on the individual test to open its history page.
Medicines
Using Patients Know Best
Home > Treatments > Medicines
All medications added to the record can be found here. For current medications we show the ones started most recently first. For past medications we show the ones stopped most recently first. Click on a medication to see more details.
New Pages and Features
The switch to Patients Know Best will offer you a range of new pages and features explained below.
Some of these allow your healthcare providers to share more information with you and interact with you digitally.
Many of these you can use independently to help manage your health.
Allergies
Home > Health > Allergies
All allergies added to the record can be found here. Most recently recorded allergies will appear first. Click on an allergy to show detailed information, such as the date it was recorded and associated severities and reactions.
Care plans
Home > Treatments > Plans
Care plans include instructions on what to do in common situations such as worsening of your condition. It can also contain helpful information or videos, as well as goals and targets to reach in between consultations.
The Kidney Results and Measurements Tracker has been designed to support patients in managing their kidney condition. It will provide some of the most important tests and measurements from the past, and will automatically pull through the results of new tests taken.
The My Conditions care plan contains details of diagnoses, and provides links sent by the UK Kidney Association to support you in managing your condition.
Symptoms
Home > Health > Symptoms
Record and track your symptoms here.
Where a team has requested certain symptoms to be monitored, they will appear here. You can also record any symptom from the entire list to track progress over time.
Library
Home > Treatments > Library
Useful information and links to resources can be stored in the Library.
Clinical teams can add and edit links and you can add your own links too. Simply click 'Add Link' and enter the URL of the website to add information.
Appointments
Home > Diary > Appointments
Appointments can be found here.
You can add your own appointments and edit them too. Simply click on the ellipsis menu, followed by 'Edit'. A status can also be added for each appointment where required, for example, 'Cancelled'.
Journal
Home > Diary > Journal
You can add Journal entries to note how you are feeling on any given day. It is also possible to start a discussion about the entries in the Journal. Click 'Add Entry' to complete the form, or 'Edit‘ using the options (ellipsis) menu.
Access log
Home > Sharing > Access Log
The Access Log stores a record of anyone that has accessed the record.
Here you can see who accessed the record, when and what they viewed.
Add a professional
Home > Sharing > Professionals
Where a healthcare team does not use PKB, you can give individual professionals access to help manage your care. Click 'Add an individual‘ and their details. Then, choose which privacy labels should be applied.
Add a carer
Home > Sharing > Friends/Family
You or a professional can add a carer to your record. Simply click ‘Add carer’ and complete the form. An invitation will then be sent to the carer's email address where they can accept the invitation by completing a form.
Files
Home > Files
Keep hold of any important paper letters or medical information safely in one place, for example, any hospital letters. Simply click 'Add File' to upload a digital copy here.
How to add a plan
Home > Treatments > Plans
Click on the Treatments tab and then click Plans. Press the Add Plan button.
Click the Template drop-down list and choose My Kidney Results and Measurements Tracker. Press the create button.
Scroll down to the bottom of the screen and click save.
The Action Plan in the My Kidney Results and Measurements Tracker explains how to use the plan and what it contains.
Current list of live sites sending patients their renal data:
Alder Hey Children's NHS Foundation Trust - Alder Hey Children's Hospital.
Barts Health NHS Trust - Barts and the London Hospital.
Belfast Health and Social Care Trust - Belfast City Hospital.
Birmingham Women's and Children's NHS Foundation Trust - Birmingham Children's Hospital.
Bradford Teaching Hospitals NHS Foundation Trust - St Luke's Hospital.
Countess of Chester Hospital NHS Foundation Trust - Countess of Chester.
Doncaster and Bassetlaw Teaching Hospitals NHS Foundation Trust - Doncaster Royal Hospital.
Dorset County Hospital NHS Foundation Trust - Dorchester Hospital.
East and North Hertfordshire NHS Trust - Lister Hospital.
East Kent Hospitals University NHS Foundation Trust - Kent and Canterbury Hospital.
East Suffolk and North Essex NHS Foundation Trust - Colchester Hospital .
Epsom and St Helier University Hospitals NHS Trust - Carlshalton Hospital.
Gloucestershire Hospitals NHS Foundation Trust - Gloucestershire Royal Hospital.
Guy's and St Thomas' NHS Foundation Trust - Guy's Hospital.
Hull University Teaching Hospitals NHS Trust - Hull Royal Infirmary.
King's College Hospital NHS Foundation Trust - King's College Hospital.
Lancashire Teaching Hospitals NHS Trust - Royal Preston Hospital.
Leeds Teaching Hospitals NHS Trust - St James Hospital.
Liverpool University Hospitals NHS Foundation Trust :
Liverpool Royal Hospital.
Broadgreen Hospital.
Manchester University NHS Foundation Trust - Manchester Royal Infirmary.
Norfolk and Norwich University Hospital Trust - Norfolk and Norwich University Hospital.
North Bristol NHS Trust - Southmead Hospital
North Cumbria University Hospitals NHS Trust -Cumberland Infirmary
Northern Care Alliance NHS Foundation Trust - Hope Hospital.
Oxford University Hospitals NHS Foundation Trust - Churchill Hospital.
Portsmouth Hospitals NHS Trust - Queen Alexandra Hospital.
Royal Berkshire NHS Foundation Trust - Royal Berkshire Hospital.
Royal Cornwall Hospitals NHS Trust - Truro - Renal Unit, Royal Cornwall Hospital.
Royal Devon and Exeter NHS Foundation Trust - Royal Devon and Exeter Hospital.
Royal Free London NHS Foundation Trust - Royal Free Hospital.
Royal Wolverhampton NHS Trust -New Cross Hospital.
Sheffield Teaching Hospitals NHS Foundation Trust - Sheffield Kidney Institute.
Shrewsbury and Telford Hospital NHS Trust - Shrewsbury Royal Hospital.
South Eastern Health and Social Care Trust - Ulster Hospital.
South Tees Hospital NHS Trust - James Cook Hospital.
South Tyneside and Sunderland NHS Foundation Trust - Sunderland Royal Hospital.
St George’s University Hospitals NHS Foundation Trust - St George's Hospital.
The Dudley Group NHS Foundation Trust - Russells Hall Hospital.
The Newcastle upon Tyne Hospitals NHS Foundation Trust- Freeman Hospital.
University Hospitals Birmingham NHS Foundation Trust - Birmingham Queen Elizabeth Hospital.
University Hospitals Bristol and Weston NHS Foundation Trust - Bristol Royal Hospital for Children.
University Hospitals Coventry & Warwickshire NHS Trust - Walsgrave Hospital.
University Hospitals of Derby and Burton - Royal Derby Hospital.
University Hospitals of Leicester NHS Trust - Leicester General Hospital.
University Hospitals of North Midlands - Royal Stoke University Hospital.
University Hospitals Plymouth NHS Trust - Derriford Hospital.
University Hospitals Sussex NHS Foundation Trust (East) / Formerly known as Brighton & Sussex University Hospitals - Sussex Kidney Unit.
Wirral University Teaching Hospital NHS Foundation Trust - Arrowe Park Hospital.
York and Scarborough Teaching Hospital NHS Foundation Trust - York Renal Unit.
Register for the Renal Services and Research team at The UK Kidney Association.
For more information
If you have questions about PKB that may not have been answered in this document then have a look at the Frequently Asked Questions
If you would like to find out more about how you can share your PKB record with a carer or professional then take a look here
For more information about the UK Kidney Association (formerly known as The Renal Association) click here
Download a PDF guide
Click here to download the guide as a PDF
The ‘future is bright’ for patients of the Kidney Dietetics Service
“The transformation for our service has been brilliant! We no longer have to rely on email to send patients their information and we can benefit from all the functions that PKB offers.” Katherine Durrans, Clinical Lead Renal Dietitian
Features used
Library
Secure messaging
Care plans
Consultations
Outcomes
Improved self-care
Two-way interactions
More responsive to real time patient needs
Quicker response times for patients
Read the full case study here - https://patientsknowbest.com/hull-kidney/