User research - Privacy notice

Patients Know Best - User Research Privacy Notice

Patients Know Best (PKB) will collect and process the following information as part of your User Experience interaction:

The above information is provided directly by you and will only be used for the following purposes:

Under the General Data Protection Regulation (GDPR) the lawful basis PKB relies on to process this information is:

Your information is securely stored with access limited to those that need to view it. If the consent is withdrawn, any subsequent deletion of information would also include video recording of sessions.

We keep your personal information, as above, for five (5) years. PKB will then dispose of your information securely by deleting all your personal data. 

Your data protection rights are not impacted and remain:

To review the full PKB Privacy Policy follow this link: Privacy Notice | Patients Know Best


If you have any concerns about our use of your personal information, you can make a complaint to us at


You can also complain to the ICO if you are unhappy with how we have used your data.

The ICO’s address:           

Information Commissioner’s Office

Wycliffe House

Water Lane





Helpline number: 0303 123 1113

ICO website: