Disabled sharing

What is disabling sharing?

Disabling sharing means that no one except the patient can view any data in the patient's medical record in PKB other than what they (or members of their team) have added. Even breaking the glass is not possible, so the PKB record cannot be used in an emergency. 

Patients will keep access to all data, even if the data has been added by professionals who no longer have access to their record. Professionals will only see the data their team have previously added to the record, and will not be able to add further data.

What criteria must patients meet to disable sharing?

Which patients cannot disable sharing to their record?

How do I disable sharing?

Once logged in, use the search form to locate the patient. Click the 'Disable sharing' link next to the name of the patient (there will not be a link if the patient does not qualify for their sharing to be disabled). Check the box to confirm that someone has gone through the consent process with the patient and complete the rest of the form.

How do I re-enable sharing?

Click the 'Enable sharing' link next to the name of the patient (there will not be a link if the patient doesn’t have their sharing disabled) then complete the form. 

Can I view the history of sharing disabling activity?

Yes, Privacy Officers can view the history of sharing being disabled and enabled in PKB. 

To do this, click the 'View sharing history' link next to the name of the patient.

What happens when sharing is disabled?

Dear [patient name]

This is confirmation that sharing has been [disabled/enabled] on your Patients Know Best record by the privacy officer [privacy officer name] from [organisation name] as of [date of action].


Patients Know Best Help Team

What happens if I try to add a patient who's sharing is disabled to my team?

What access is there via HL7 and REST?

What happens with consultations and messages?

What can patients do in their record when sharing is disabled?

Is there an effect on custom integration flows (EMIS, NCRAS etc.)?